Batten Disease is a fatal neurodegenerative disorder that takes away childhood, and then takes away the child. Sadly, it is one of hundreds of rare conditions that claim that lives of children every year. But there is hope.

With your support, the Beyond Batten Disease Foundation is working to identify and fund scientific breakthroughs to find a cure for Batten Disease.

We also are developing a simple carrier-screening test to detect the gene mutations for hundreds of rare conditions that claim the lives of thousands of children each year.

Thank you for your donation and for giving the gift of hope to all the children with Batten Disease and other “orphan” conditions!