Beyond Batten

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Volunteer

Donate

Beyond Batten Disease Foundation needs your support to find a cure for Batten disease and develop one easy test to detect the gene mutations for hundreds of rare diseases. You can get involved in several ways:

Donate Money

Donate by Mail – Download, print and complete this form along with your check.

Donate by Telephone – Call us at 1-877-6BATTEN or 512-275-2600 to donate over the phone using a credit card.

Also, please specify if you would like your donation to support research to find a cure for Batten disease, the development of a new test to screen for rare genetic diseases, or both.

Donate Through Randall's Good Neighbor Program – If you shop at Randall’s, visit the Courtesy Booth and link your Remarkable Card to Organization #12112. In addition to the many benefits and in-store savings the Remarkable Card offers, Randalls will pay 1% of your total grocery purchases to Beyond Batten Disease Foundation.

Join Team Beyond Batten

Would you like to run a marathon or complete a triathlon? Throw a golf tournament? Host a dinner party? Have your friends and family make a donation in honor of your birthday or other special occasion?

By joining Team Beyond Batten, your effort can help us reach a bigger audience and move closer to our goal of eradicating Batten Disease.

Host an Event

If you would like to have your own event to raise funds for the Foundation, please click here to review a copy of our third-party event guidelines, and here to download a registration form to complete and return for approval.